Celine Dionthe legendary voice behind “My Heart Continues” continues her fight against hard human syndrome. This is a rare and debilitating neurological disorder that she is forced to retreat from playing. In May 2023, the 57-year-old singer cancelled her courage World tours due to illness complications call it “a tremendous disappointment.”
“It’s not fair to you to continue postponing the show,” she told fans in a statement from Hartfeld.
Despite her health challenges, Celine made two surprise releases in 2024: Presenting this year’s album Taylor Swift They will perform at the Grammy Awards and at the opening ceremony of the Parisio Lymph. Both reassured the fans and caused a standing ovation.
Still, concerns about Canadian superstars remain high. In mid-2025, false rumors claiming Dion had died began circulating online, urging fans and the media to fact-check the claims. The singer’s representatives immediately confirmed that she was alive and urged to be careful about spreading misinformation to people.
Celine’s legacy spans decades, with five Grammy Awards, a record-breaking Las Vegas residency and international fame that solidifies her status in music history. Her last full concert performance took place in July 2019 at Hyde Park, London. Since revealing her diagnosis in December 2022, she has kept her fans up to date through a statement, and more recently she has been updating her through a deep, personal documentary documenting her struggle with the disease.
Here’s what you need to know about Celine Dion’s state, how she’s doing today, and what’s next.
Celine Dion has been diagnosed with stiff human syndrome
Celine shocked the world with disastrous news in 2022 when she revealed her diagnosis of Hard Person Syndrome (SPS) in an emotional video across social media, including Instagram. According to John Hopkins Medicine, rare conditions that often affect “around about one or two people in a million” are known to cause a series of neurological health problems.
“Sorry, sorry,” Celine said on an Instagram video at the time. “I miss you, and I can’t wait to speak to you in person. As you know, I have always been an open book, and I was not prepared to say anything before. But I am ready now. I have dealt with my health issues for a long time.
What is hard human syndrome?
Hard-person syndrome, according to the Neuropathy and Stroke Institute, can cause muscle stiffness and cramps, leading to increased sound quality and sensitivity to light, and emotional distress that can cause muscle spasms. It is extremely rare, and diagnosis can take years, and there is no treatment at the moment.
“It’s often associated with muscle cramps, but this can be very serious. These can cause falls, severe pain and serious damage.” CNN. “Falls from severe convulsions are very common. These convulsions can be precipitated by surprise, serious emotions, and cold weather.”
The truth is that this disease can manifest in extreme ways, like this young woman in Tiktok, that some people with hard human syndrome cannot even walk on their own.
How sick was Celine Dion?
Celine has been struggling with SPS for over a year as she had to postpone the tour to April 2022. “It’s a shame we’ll have to change our European tour plans again. We had to move the show first due to the pandemic. The 30 moms were forced to do the same in December of that year, not only had to postpone the tour to April 2022, but also because her condition hadn’t improved enough to return to stage in December of that year.
In April 2022, Celine said she was “a little better,” but her recovery was “very slower.” And eight months later, sadly, Celine wasn’t recovering at the speed she wanted. This condition affects her abilities, including her ability to use her vocal cords at a capacity of “100%” and her vocal cords. “There’s an incredible team of doctors working with me, and my precious children who support me and give me hope,” Celine assured her support in December.
The talented artist first made her way forward with her health in January 2022, but she has yet to reveal an official diagnosis. Celine issued a statement via Instagram, sharing that “severe and persistent muscle cramps” with her 5.5 million followers “severe and persistent muscle cramps” “stop her from playing.”
How about Celine Dion today?
Celine seemed to be on her path to recovery as she created new music for the 2023 film. I love it again,starring Priyanka Chopra. People from Canada have appeared in films with Priyanka and Outlander‘s Sam Heugan. Celine took her to Instagram in November 2022 just weeks before the diagnostic clip to announce her ROM-COM. “See you in the movie! Celine stars with @priyankachopra and @samheughan and releases new music for a romantic comedy I love it again (New title!) Coming to the cinemas on May 12th (a new date!)” her team captioned the post.
Her sister Claudette reportedly told a local Canadian news outlet about her sister’s health. mark, January 2023. “I’m sure life will give her what she has given me. “I don’t cry for her destiny, I try to send her a positive vibe in hopes that she will one day return to stage. I really believe in the power of love. I wish her good luck.
Celine continues to work to improve her condition. With the announcement that she has cancelled her courage On the world tour, she shared that she still couldn’t go down the path. “I’m sorry for letting you guys down once more. I’m working really hard to get back to my strength, but even if you’re 100%, tours can be very difficult,” she said on May 26, 2023.
It is reportedly that she spoke a few months after her last update on Claudette’s sister Montreal’s diary (via Shemaging) In August 2023, he reported tragic news about Celine. “We can’t find a drug that works, but it’s important to have hope,” Claudette reportedly told the outlet. The brothers involved pointed out that Celine thinks she needs adequate rest. “To be honest, I think she mostly needs to rest. She always goes beyond that. She’s always trying to get to the top of the game,” she added. “At some point, your mind and your body are trying to tell you something. It’s important to hear it.”
A month later, Claudette reopened about Celine in another update. “She works hard, but she can’t control her muscles,” Claudette said. 7 days (via Daily Mail) Interview in December 2023. “What broke my heart is that she is constantly being disciplined. She’s always working hard. Our mother always told her, ‘You’re trying to do it well, you’re going to make it right.’
Still, the family hasn’t given up hope for Celine to return to stage. Claudette said, “It is true that, both our dreams and her, the goal is to return to the stage. With what ability? I don’t know.”
Oh yeah, Serin Dion is soothing, and so is nature pic.twitter.com/ta7f8p2uwy
– Miguel 🌠 (@ElasticDijon) March 22, 2024
In March 2024, Celine was seen enjoying the Bruins game. video.
Celine released the first trailer for her documentary I’m Celine DionHe recorded his battle with hard human syndrome on May 23, 2024. The trailer gave fans a glimpse into how her diagnosis affected her physically and emotionally, and how she influenced her journey back on stage. The documentary will be available on Amazon Prime on June 25th.
Celine Dion #PARIS2024 #Olympics #olympic2024 pic.twitter.com/3f8pm0qre
– @fancelinedionicon (@celinedionlcon) July 26, 2024
In July 2024, Celine won her victory by performing “Hymne a l’Amour” at the opening ceremony of the Parisiolmín.
